What an absolutely stunning debut novel from Katya Balen! Simultaneously heart-breaking and uplifting Balen examines the difficulties faced by a child living with a special needs sibling.
Frank is ten years old. He loves soccer and space, he loves secret codes and playing in the ‘Wilderness’ with his two best friends. He loves living in his funny dilapidated house with his loving mother and father and he sort of loves his 5 year old brother Max who is severely autistic. Really Frank is struggling with his relationship with Max and often resents the way his little brother’s condition monopolises his mother’s attention and creates general havoc in the home and anywhere else. He knows that his mother and father love him dearly but there are times he wishes that they were in the same place they were before Max arrived.
We are her world and her universe and her space and her stars and her sky and her galaxy and her cosmos too
His mum’s constant affirmation of her love for them all is the lodestone to which Max clings and the rare moments they spend together just the two of them are infinitely precious to him.
When unspeakable tragedy strikes Frank is even more at odds with his brother but gradually through the support and intervention of understanding people such as neighbour Mark as well as his friends, Frank begins to piece together a new cosmos for his family – one that is different and not always easy but one in which Max is no longer light years apart from him.
Tissues are needed for this as there was a great deal that hit a little too close to home for me and it would be best that readers of a sensitive nature should be cautioned about the often very emotional content but it is a truly fabulous read. Often the voice of a sibling who finds themselves in this situation is glossed over or idealised or even just ignored. This book addresses the very real conflict that such children can experience and shows that there can be a way forward.
Highly recommended for readers from around 12 years upwards.